We found ourselves in the world of HIE when our daughter was born in March 2015 – she stopped breathing shortly after birth and, without any warning, our NICU journey began. Neither me nor Steve had heard of HIE before, none of our friends or family had, and let’s be honest, it was a scary time. I googled it (going against the advice of all the nurses of course!), and luckily found a Facebook forum for families. If it hadn’t been for that group, the advice and information offered by other mums and dads, I think we might still have been wondering what on earth was going on! So, we wanted to change things a bit, reach out to families in the early days, and bring the information to them, rather than them having to look for it.